The Blog
Self-Advocacy / Essay / 4 min read

Bring a binder to the fight.

Paper trails, pointed questions, and politely refusing to be shuffled along.

Boxing gloves resting on an overstuffed binder with sticky notes

Here is the least glamorous superpower in existence: keeping records. Dates, names, what was said, what was promised, and what was a firm “we’ll see.” When your memory is competing with brain fog for the same job, paper wins.

Ask the question everyone is scared to ask: “What is the plan if this doesn’t work?” It is polite. It is reasonable. And it makes very clear that you intend to still be here, taking notes, at the next appointment.

“We’ll start conservative” is a beginning, not a verdict. So is “let’s wait and see.” You are allowed to ask what, precisely, you are waiting to see. You are allowed to want a verb instead of a shrug.

Then there is the sentence that changes rooms: “Can that be noted in my chart?” Say it sweetly. Say it once. Watch how quickly the energy in the room reorganizes itself.

Self-advocacy is not being difficult. It is being the project manager of the only body you were issued. Nobody else is doing it. Nobody else can.

End of thought. For now.More where that came from

Another rabbit hole?